Rosacea-Psoriasis-Eczema Data Project

Ooooh I’m glad you left instagram to come here because I want to tell you about a very special #sidehustle.

But first, some context. My journey here started on an early summer day in 2013. I was cradling my 3-month old daughter in my arms and I was reflecting on how beautiful it felt to be a mother. Then suddenly, I felt an itch on my cheek. I looked to see what it could be, and there they were… a few red bumps. “Must be some kind of pregnancy-related rash”, I thought. Hmmm… then a few more red bumps, then a lot of red bumps, until my right cheek was covered and a few showed up on my left cheek too. Before I knew it, my 3-month old turned 1.5 years old and I finally had to admit: this was no rash. My dermatologist confirmed it was rosacea.

But enough about me, because my story has a good ending… as long as I’m eating low-carb paleo, with a few other modifications (e.g. no nuts), my rosacea isn’t noticeable.

Thing is. The diet is hard. And still, I have more questions than answers. So in comes my side hustle.

I am launching a data project in July 2017 to find patterns in our skin conditions.

Not just rosacea – but eczema and psoriasis too. You see, I found my solution by wandering out of the rosacea tag and into other, seemingly unexplainable, skin conditions. I mean, this is a gut-thing, right? or is it a mite-thing? or is it a histamine-thing? or is it a Type A personality thing? Oh, it’s probably an acidic thing. Anyway, you get the idea.

I’m looking for data clues to help us answer questions like:

  • If you’ve just been diagnosed with rosacea, what solutions have the highest likelihood of success right at the start?
  • How long does it take most people to see results?
  • Are there any similarities between our histories and our skin conditions?
  • What, in our histories, are common?
  • What happened, if anything, in our lives around the time we were diagnosed?

I will have a questionnaire available in July 2017. Every 2 weeks thereafter, I will take the information, transcribe it onto index cards – then I’ll study them in my data room to find patterns. More data = more chance for patterns.

If you, or anyone you know, would be interested in participating, email me at himonakowski@gmail.com. I’ll share the questionnaire and a link so you know where to go for ongoing progress updates from the data room.

See you down the rabbit hole!

Monica (@monakowski)